Might just be the simplest thing

My heart in sharing with others has always been the intent of encouraging them. Waiting for happy/healthy post ideas is causing me not to blog at all.

This is for those of you who deal with chronic health issues.

Sometimes it may well be the simple things causing present problems.

Several weeks ago I began feeling sudden jolts of severe pain in my left ear.  These horrible sensations were not new to me. Yet the fact that I was feeling this at all was frightening. You see in 2006 I had brain surgery to stop the jolts of pain called Trigeminal Neuralgia
I began to question my Neuro Surgeons assurance that it would never come back. I went to see a  friend who is also a Nurse Practitioner to see if I could have a simple ear infection. (Due to the flu epidemic I did not want to sit in my family Dr’s waiting room for him to look) She said that I did have fluid behind my ear drum. She recommended I take a second-generation antihistamine daily to see if this dried up the fluid thus stopping my pain. Over the next month the jolts of pain became less and less. I’m not feeling them at all now.

Soon after I came down with a case of shingles. I called my Neurologist (again not my Family Dr. b/c I knew his waiting room surely has become a petri dish of flu) He prescribed anti viral medication and because of my recent concerns with the TN pain and fatigue etc., he recommended a round of oral steroids. In his words “to nip it in the bud” I almost always refuse the steroids. Yet this time I was tired of feeling tired and in pain etc. So I took them. *another post about the fact that I have MS later*

My shingles had initially seemed to respond to the anti-viral meds becoming less inflamed. But as soon as the steroid/ anti viral prescriptions were finished the shingles did re-inflame. They also began to look infected. So now I was afraid. I called my family Dr. and  after I told his office girl my fear of sitting in his waiting room she suggested that I come in as 1st patient and wait for him in one of the freshly cleaned exam rooms. (should have done this right off the bat)

He said #yes this looked like a case of shingles #2 the infection in them looked like something he had seen before on an immune compromised patient. He suggested that steroids are not good to take with shingles because they suppress your immune system. So he is treating me with more anti-viral drugs and antibiotics.

As time has gone on during these recent health issues I’ve become more and more fatigued and dizzy. Of course I blamed this on having the shingles, being on so many drugs and my MS.

Yet today it hit me: Could the drug I began a month ago for the fluid behind my ear causing me this extreme fatigue and dizziness? I texted with the Nurse Practitioner and she said that Zyrtec could cause tiredness but usually doesn’t. Guess I’ll try another.

Saying Goodbye to my sister

I found this draft I’d written just days after my only sister’s death last December.  I was unable to publish it at that time.

She donated her body to Indiana University’s Anatomical society and tomorrow they will have a memorial

service and burial for her and others who donated their remains to benefit future health professionals.

It’s time to share her story:

Many desire to know how I am doing with the loss of my sister. This has ripped my heart and yet at the same time given me some peace about her tormented state.  Mary Jane was a uniquely wonderful person in so many ways.   MJ and I weren’t close as children because of our age differences. Then at the time we could have been she was off literally traveling the world. She was a free spirit in the fullest since of the word.  Yet from the beginning of her young life and throughout most of her adult life Mary Jane dealt with profound sadness… ultimately this affected her health.  She lost some people who were very important to her- I don’t know that she was able to get over these losses.

MJ made a public profession of her faith after getting involved in a church in her 40s. It wasn’t very long after this that depression and addiction caused her to feel she was a failure. She became faithless because she could not grasp grace.   She talked of suicide many times.  The medical examiner says there were no signs of suicide when her body was found on that Wednesday evening- I know in my heart that she had not been taking her blood pressure medication, or her high colesterol medications for months. She’d not been eating- only drinking more and more over the past few months. She was also feeling bad with early stages of emphysema and chronic pain both emotional and physical.

In spite of these difficulties MJ was able to enjoy many experiences most of us never do. She lived in Africa, Thailand, Garnish Germany, She lived off the  land in the grand canyon for months. She walked alone except for the companionship of a crippled Irish setter 1/3rd of the Application trail. She traveled extensively in Italy and France. She’s sailed the seas.  She became an accomplished culinary chief for friends and family.  She adored her garden and loved to propagate new starts of plants to share with others.  She bought me my favorite rose bush called Bliss (oh the smell of these blooms).  Mary Jane was such a giving person that she often gave things she shouldn’t have. Her friends know that there wasn’t anything she wouldn’t do for you.

MJ died just shy of her 60th birthday.  This loss is deeply difficult.  Not just that she is gone- but that she was so sad and so tormented for so long before her death.

I will miss my sister until the day I die.

2 Timothy  ”If we have died with him, we will also live with him;” *vs 11*

 and  ”if we are faithless, He remains faithfulfor He cannot deny Himself ” *vs 13*


 

It Began with a free vacation

'Folding laundry' photo (c) 2010, Lisa Clarke - license: http://creativecommons.org/licenses/by-nd/2.0/It began with a free vacation.  Tommy and I along with our 3 month old Golden Retriever slept in a king size bed for a week.

We’d not had room to snooze like that since the 1970′s when we enjoyed our room size water bed. For some reason after the leaks we downsized and then again when my Father passed away and we were able to add his antique bedroom set to our home – however it is a standard full size.

The first night on vacation we knew we’d be paying for our trip once we returned home because a bed upgrade was in order.

Long story short we ended up not just buying a king sized bed, but a “mac of a bed”, an all latex top of the line adjustable bed.  Major expense yet one I don’t think we’ll ever regret.  Amazing how wonderful this bed is.

However getting the bed required changing the entire arrangement of the bedroom to make it fit. Which also meant removing the 100+ pound 32 inch fat television that was now mounted on the wrong side of our room. Once it was down we decided its surely the time to replace it with a sleek and much less intrusive flat screen.

Right in the midst of all these exciting changes and expenses our 20 year old washer went out. Tommy is able to repair most anything. But after finding the source of the washing machine leak he declared that  this problem was not going to be worth the cost or effort to fix.  So we ended up buying a new washer/dryer set.

This when the paint on our bedroom walls was still too wet to hang the pictures.

So here we are one month from Christmas and have spent more money on ourselves than we spend for the entirety of the holiday season for a decade!

Do you think the kids/ grandkids might appreciate a gift card that says Mom/Granny will do your laundry  instead of buying Christmas gifts?

Just pondering the idea:)

Free Vacation

'Folding laundry' photo (c) 2010, Lisa Clarke - license: http://creativecommons.org/licenses/by-nd/2.0/ It began with what was to be a free vacation.  Tommy and I along with our 3 month old Golden Retriever slept in a king size bed for a week.

We’d not had room to snooze like that since the 1970′s when we enjoyed our room size water bed.  For some reason after the leaks we downsized

and then again when my Father passed away and we were able to add his antique bedroom set to our home – however it is a standard full size.

The first night on vacation we knew we’d be paying for our trip once we returned home because a bed upgrade was in order.

Long story short we ended up not just buying a king sized bed, but a “mac of a bed”, an all latex top of the line adjustable bed.  Major expense yet one I don’t

think we’ll ever regret.  Amazing how wonderful this bed is.

However getting the bed required changing the entire arrangement of the bedroom to make it fit. Which also meant removing the 100+ pound 32 inch fat television that was now mounted on the wrong side of our room. Once it was down we decided its surely the time to replace it with a sleek and much less intrusive flat screen.

Right in the midst of all these exciting changes and expenses our 20 year old washer went out. Tommy is able to repair most anything. But after finding the source of the washing machine leak he declared that  this problem was not going to be worth the cost or effort to fix.  So we ended up buying a new washer/dryer set.

This when the paint on our bedroom walls was still too wet to hang the pictures.

So here we are one month from Christmas and have spent more money on ourselves than we spend for the entirety of the holiday season for a decade!

Do you think the kids/ grandkids might appreciate a gift card that says Mom/Granny will do your laundry  instead of buying Christmas gifts?

Just pondering the idea:)

Turkey Soup w/ Egg Noodles

Ultimate comfort food


Ingredients
2 teaspoons olive or vegetable oil
2 leeks, cleaned and chopped
2 carrots, peeled and chopped
1 clove garlic, minced
1 stalk celery, chopped
3 to 4 cups leftover cooked turkey, shredded or cubed
2 to 3 bay leaves
2 teaspoons dried thyme
2 teaspoons dried basil
1 teaspoon sage
1 teaspoon poultry seasoning
1/2 teaspoon ground black pepper
12 cups turkey stock from carcass (mentioned in previous recipe)
6 ounces uncooked egg noodles
2 tablespoons chopped fresh parsley leaves
plenty of garlic salt & onion salt.. not regular salt
If your broth wasn’t entirely rich you can add chicken stock
Sometimes I add some red pepper for color
Directions
Heat oil in a large stock pot or Dutch oven over medium heat. Add leeks, carrots, garlic, and celery and saute 4 minutes, until soft. Add turkey, bay leaves, thyme, salt, and black pepper and stir to mix well. Add turkey stock and/or chicken broth and bring mixture to a boil. Reduce heat to medium-low, partially cover and simmer10 minutes.
Return mixture to a boil and add egg noodles. Cook 10 minutes, until egg noodles are just tender. Remove from heat, discard bay leaves and stir in parsley.
At this time after the noodles are done add cleaned pieces of turkey.

Don’t throw out the bones!

'Turkey Blog #10 - Stock' photo (c) 2008, kurisurokku - license: http://creativecommons.org/licenses/by-nd/2.0/

There is no better broth for soups than what you can get from your turkey carcass. We had our Thanksgiving at a restaurant this year and I so missed making the great left over casseroles and then the broth which I refer to as liquid gold for turkey soup.

Even if you have to throw the carcass in a bad into the freezer.. (keeping all the gelatin and skin too.. everything is good to make the broth richer and more tasty.

Pick all the meat you can off of it. If you don’t want to deal with it now, chop it up freeze the carcass as well. If you have room in your freezer. Or make the broth and freeze that and make the soup later.

1 turkey carcass
water to cover
2 cloves garlic (optional)
1/2 tsp basil
1/2 tsp parsley
2-4 peppercorns
1-3 tsp salt
a few shakes of pepper
2 stalks of celery
2 carrots
1 onion, halved

Put the turkey carcass in a big stock pot and cover with water. You can break up the carcass a bit to fit the pan. Add everything else. You don’t have to peel or neatly slice anything. Just break it up into chunks. And don’t worry if you don’t have something; broth is very flexible. Bring it to a boil, cover, and reduce heat. Simmer (with barely a bubble breaking the surface) for a few hours. Simmer longer if you have time, but it will be good after a few hours. Strain the soup using a colander or cheesecloth or whatever you have around. Pick out all the meat you can and reserve for soup later. Put the broth into a large jar and refrigerate it overnight.

In the morning or the next evening when you go to make the soup, the fat will have solidified at the top so you can just spoon it off. Generally, the broth will be quite thick and jellylike. This is good. When you heat it to make soup it will be perfect. Keep the broth for 5 days in the fridge or freeze it for soup later. I like to freeze it small portions.

Next post will be some soup recipes!

This should NOT be the face of PD

My plan was to update my blog titled This Can’t Be  My action was to cry.

Face of Parkinson's Disease?

 

Out of darkness

          Testimony time

Invisible Slump #iiwk11

This is National Invisible Chronic Illness Awareness Week 

Truth is multiple sclerosis stinks.

I was diagnosed in July of 2003 during a medical workup for episodes of terribly painful stabs of pain into my left ear canal that were becoming intolerable.  That ultimately was diagnosed as trigeminal neuraliga. At the time I could not pronounce or spell it.   I’ve blogged about TN previously and the brain surgery that stopped the pain. 

And it turned out for me that trigeminal neuralgia was not caused by my multiple sclerosis; they were actually two separate neurological conditions going on.

My multiple sclerosis has set a really slow tempo of progression no doubt this is great news.  The symptoms I deal with are primarily invisible to those who deal with me on a casual basis.  I don’t walk with a limp or outward disability. On good days *the times you’d see me out and about* I look pretty good :)

Yet, if people only knew my  invisible struggles.  Fatigue that makes me feel like I’ve been run over by a truck.  Heat intolerance to the point that I can not see straight to drive after being over heated by the temperature outside or a hot bath or a fever. Migraines that can ruin two or three days in a row. Sleepless nights which lead to a bad attitude and non accomplished days. Chronic urinary  tract  infections caused by a neurogenic bladder that will not completely empty on it’s own and then requires intermittent self catheterilzation.  Cognition issues that make it difficult for me to comprehend directions given or a book I’m trying to read if there is any competing stimuli going on around me.  Dealing with these things almost constantly brings me into battling depression.

My plan today was to write a blog post about my invisible chronic illness and to top it off I saw our picture included in Montel Williams slideshow titled: I am the Face of MS

Steve Jobs & iGranny

I’ll always be grateful that I’ve been alive during Steve Jobs career at Apple.  My enthusiasm  towards Apple is due to this man’s ability to make complicated technology  so simply desirable that even a Granny can find it delightful.

I consider him an artist who has created a collection of masterpieces I have admired from afar and once obtained results in an emotional devotion that includes becoming part of a community.  Who else has done this with hardware and software?

For me it began with an iPod.

Steve Jobs is the reason I’m known as SwitchinngGranny.  Watching his passion during keynotes caused me to switch from windows operating system to the exciting world of mac.

I  believe that  because of Steve the average consumer has moved into the digital age.

I wish Steve some valuable time with his family,  improved health and most importantly I pray he is able to enjoy divine communion with the master Creator.  May God Bless Steve Jobs.

How has Steve Jobs and Apple influenced your life?

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