Tag Archive - MVD

Can’t forget the Suicide Disease

May 20, 2011 in Brain Surgery, Chronic Illness, slideshow, Trigeminal Neuralgia with 0 Comments

Screen shot 2011-05-20 at 9.25.00 PM

 

Warning Graphic Slideshow of MVD (Micro-Vascular Decompression Surgery) which I underwent in 2006 to stop the monster   known as TN  (trigeminal neuralgia)

I saw this sideshow tonight on a online TN support and realized that I just can’t forget the significance of what I endured as far as the pain from the “Monster *TN*” and the gravity of the 5 1/2 hr brain surgery I went through to stop the pain.

There are plenty of people who suffer with this terrible pain today.  My heart, my prayers go out to them and their families.  Some are afraid to endure major brain surgery, others have had this procedure or others and have either not had success or did for a time and then the monster returned. Still others have found other ways to try and keep their TN at bay

Trigeminal Neuralgia is rare.  But this diagnosis is associated with suicide more than any other diagnosis. Just want you to stop and say a prayer. Thank-you

And here is a video that a couple entered in the Neuro Film Festival

And another really informative video about Trigeminal Neuralgia

Help for the Suicide Disease

November 20, 2010 in Brain Surgery, My Story, Trigeminal Neuralgia, Video with 0 Comments

Today is my 5th  anniversary of being free from pain after having an mvd for Trigeminal Neuralgia.
I’m posting video’s in celebration and to inform others.

Comprehensive interview w/ fellow TN sufferer who also had mvd

August 24, 2010 in Brain Surgery, Trigeminal Neuralgia, Video with 0 Comments

About the MVD surgery I had in 06

April 7, 2009 in Brain Surgery, My Story, SwitchingGranny's Stuff, Trigeminal Neuralgia, Video with 1 Comment

This seemed to be a little easier than the surgery I had.. but it was the same one. (my anatomy was somehow different so it took 5 1/2 hrs) But it was successful for me. In fact I’ve seen Dr. Casey speak at the TNA national conference in Michigan. Dr. Peter Konrad at Vanderbilt did my surgery.

Watched 3-D MVD with inventor commenting

September 12, 2008 in SwitchingGranny's Stuff, Trigeminal Neuralgia with 1 Comment



Today was exciting as I watched a 3-D video of microvascular decompression surgeries with Dr. Peter Janetta (among others)! What a remarkable man. He invented the surgical technique that stops TN pain in its tracks for 90% of people!

Here is the link to the book written about him: Working in a very small place

I shed a tear thinking of the awesomeness of the surgery I endured just a year and a half ago! And how very thankful I am to have had success!

Anyway Dr. Janetta is convinced that hypertension, diabetes, and even Parkinson’s disease are all caused by vessels compressing cranial nerves. Amazingly he said that he has already treated these conditions with MVD surgeries. WOW Fascinating for sure.

Tommy and I met so many folks today who have dealt with this monster and more. Some have had more than one MVD. Some have had other procedures including Gamma Knife surgery, balloon compression, radio frequency surgery and glycerol in injections. Others have found relief from complimentary medicines and procedures. One topic discussed today was Acupuncture for TN. We met a lady who is wearing a trial electric stimulation device which sends an electrical pulse to her neck and head when she begins to feel the pain of TN.

We’ve met many people who have had their lives nearly destroyed from the pain or from the “cure”, the anti seizure medications that are supposed to dull the horrible TN jabs yet often dull one’s entire mind in the process.

Then this evening the conference hosted a reception. The food was fabulous. I experienced my first chocolate fountain! Yummiest with pineapple!

Well exhausted and more updates and pictures coming tomorrow.