Invisible Slump #iiwk11

This is National Invisible Chronic Illness Awareness Week 

Truth is multiple sclerosis stinks.

I was diagnosed in July of 2003 during a medical workup for episodes of terribly painful stabs of pain into my left ear canal that were becoming intolerable.  That ultimately was diagnosed as trigeminal neuraliga. At the time I could not pronounce or spell it.   I’ve blogged about TN previously and the brain surgery that stopped the pain. 

And it turned out for me that trigeminal neuralgia was not caused by my multiple sclerosis; they were actually two separate neurological conditions going on.

My multiple sclerosis has set a really slow tempo of progression no doubt this is great news.  The symptoms I deal with are primarily invisible to those who deal with me on a casual basis.  I don’t walk with a limp or outward disability. On good days *the times you’d see me out and about* I look pretty good :)

Yet, if people only knew my  invisible struggles.  Fatigue that makes me feel like I’ve been run over by a truck.  Heat intolerance to the point that I can not see straight to drive after being over heated by the temperature outside or a hot bath or a fever. Migraines that can ruin two or three days in a row. Sleepless nights which lead to a bad attitude and non accomplished days. Chronic urinary  tract  infections caused by a neurogenic bladder that will not completely empty on it’s own and then requires intermittent self catheterilzation.  Cognition issues that make it difficult for me to comprehend directions given or a book I’m trying to read if there is any competing stimuli going on around me.  Dealing with these things almost constantly brings me into battling depression.

My plan today was to write a blog post about my invisible chronic illness and to top it off I saw our picture included in Montel Williams slideshow titled: I am the Face of MS

3 Responses to “Invisible Slump #iiwk11”

  1. Melinda Lancaster September 12, 2011 at 5:00 PM #

    Yes, MS does stink.

    As I lay here on my bed waiting for my latest flare to settle down I wonder how many days I’ll be doing this in the future and how I will make the best of them.

    It seems that we’ve got a lot of symptoms in common. My list is growing still. One thing about MS is that it is pretty unpredictable. Sorting out what is causing what can be mind-boggling. I guess that’s why I spend a lot of time trying to ignore anything I can tolerate.

    I hate MS.

    I appreciate you sharing your “invisible struggle”, Martha. I’m grateful that our paths crossed online. Another thing that we have in common is a faith in a God. I’m thankful that He sustains us through it all.

    I’m looking forward to an eternity that is MS free but for now it’s good to know that I am not alone.


  2. Nicole September 23, 2011 at 5:08 PM #

    Your first line says it all. “Truth is multiple sclerosis stinks.” I use to have invisible MS but now It is very visible. The stages are very different but nonetheless the same.

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