Truth is multiple sclerosis stinks.
I was diagnosed in July of 2003 during a medical workup for episodes of terribly painful stabs of pain into my left ear canal that were becoming intolerable. That ultimately was diagnosed as trigeminal neuraliga. At the time I could not pronounce or spell it. I’ve blogged about TN previously and the brain surgery that stopped the pain.
And it turned out for me that trigeminal neuralgia was not caused by my multiple sclerosis; they were actually two separate neurological conditions going on.
My multiple sclerosis has set a really slow tempo of progression no doubt this is great news. The symptoms I deal with are primarily invisible to those who deal with me on a casual basis. I don’t walk with a limp or outward disability. On good days *the times you’d see me out and about* I look pretty good
Yet, if people only knew my invisible struggles. Fatigue that makes me feel like I’ve been run over by a truck. Heat intolerance to the point that I can not see straight to drive after being over heated by the temperature outside or a hot bath or a fever. Migraines that can ruin two or three days in a row. Sleepless nights which lead to a bad attitude and non accomplished days. Chronic urinary tract infections caused by a neurogenic bladder that will not completely empty on it’s own and then requires intermittent self catheterilzation. Cognition issues that make it difficult for me to comprehend directions given or a book I’m trying to read if there is any competing stimuli going on around me. Dealing with these things almost constantly brings me into battling depression.
My plan today was to write a blog post about my invisible chronic illness and to top it off I saw our picture included in Montel Williams slideshow titled: I am the Face of MS