Living with suicide disease

The Facial Pain AssociationWe just returned from attending the 9th annual national conference of the Trigeminal Neuralgia Association.
This years conference was held in sunny San Diego, Ca.

I cannot describe to you the benefit we get from gathering with others who have known Trigeminal Neuralgia and other face pain syndromes. This horrific pain is described as the worst pain known to mankind.

Because it is not well known; resources for coping and medical care are often difficult to come by. Yet the Trigeminal Neualgia Association brings together experts in the field from across the world. Three days of learning that we are not alone, that there are surgical and medical treatments that can sometimes stop the pain and at least lesson it’s severity.

We network with others who are still struggling with TN and other face pain. Seriously I have made friends for life by attending the last 3 National conferences. My husband has had the rare opportunity to connect with other support persons who know this pain by association.

All of us are validated in our fears. We are encouraged by seeing others continue trying to lead productive lives. And we come away with greater understanding of our disease and ways of coping.

I am a fortunate one who found relief in brain surgery (microvascular decompression) to stop my pain in 2006. Not everyone who has TN is a candidate for this surgery. Others find pain relief for some time and then the monster returns. My most recent post about my experience with TN is here: title="It began as an itch in my ear" target="_blank">

Many of the Neuro Surgeon’s at the conference mentioned recurrent pain years after MVD. For a multitude of reasons that I will describe later. Yet meeting people who have been pain free for 12 + 16 years encouraged my hope.

But I will never forget!

This year was special because the conference concluded just one day before The 1st Annual Worldwide Trigeminal
Neuralgia Awareness Day.

And during this conference I became aware of a co group of the TNA which is working to actually find a CURE for TN. This foundation is likely the most exciting thing I was made aware of. Please check out The Facial Pain Research Foundation

21 Responses to “Living with suicide disease”

  1. google plus application March 28, 2014 at 4:08 AM #

    Generally I do not learn article on blogs, however I wish to say that this
    write-up very compelled me to try and do so!
    Your writing style has been amazed me. Thanks, quite great post.

  2. carport plans April 18, 2014 at 11:44 AM #

    There is nothing to worry about the purpose it will bring you because it functions exactly the same as a garage.
    You can get your own , plus 12,000 more project plans
    at. Get a Denver roofing estimate on a connecting roof at the similar pitch
    with the same roofing materials.

  3. professional online April 20, 2014 at 9:13 AM #

    Thanks for your write-up. What I want to comment on is that when looking
    for a good on the net electronics store, look for
    a internet site with full information on important factors such as the security
    statement, safety details, any payment methods, and also
    other terms in addition to policies. Generally take time to investigate the
    help as well as FAQ sections to get a better idea of what sort
    of shop functions, what they can do for you, and the way you
    can make use of the features.

  4. Freddie April 21, 2014 at 5:21 AM #

    –If you’re too sore, stop for a while to avoid injury–Try to excercise early to get it
    out of the way and so you don’t have to worry about it later.

    Vice versa, if you drink enough water, the body will
    flush out all the unnecessary water because it knows that the system has
    enough water. That all changed with the introduction of the “Check Mii Out”
    channel. A double chin appears as the result of loose skin and extra fat deposits.

    Warm up also begins the flow of lubricating fluid in the joints, minimizing the risk of wear and tear on the muscles.

  5. appliance Removal April 22, 2014 at 7:19 PM #

    Your means of telling everything in this post is truly pleasant,
    all can effortlessly understand it, Thanks a lot.

  6. advanced auto parts April 23, 2014 at 9:33 PM #

    Great ཿ I should certainly pronounce, impressed
    with your web site. I had no trouble navigating through
    all tabs as well as related information ended up being truly simple to do to access.

    I recently found what I hoped for before you know it at all.

    Reasonably unusual. Is likely to appreciate it for
    those who add forums or anything, site theme . a tones way for
    your client to communicate. Nice task..

  7. what is the paleo diet April 25, 2014 at 7:40 AM #

    The two of them had searched for the perfect house to buy, and after months
    of looking, decided on the perfect home in Charleston, SC.
    The majority of the time, when your ex boyfriend texts you, it is with the pretense of casual, innocent conversation.
    This free gift from nature can be turned into
    functional items and works of art.

  8. macro recorder mouse keyboard April 30, 2014 at 8:36 AM #

    There are many test automation service provider in the net today.
    People diploma thus remains great to our the best utilizing these systems, on top of that Next year has revealed the
    following the majority of samples industry-wide. Believe it or
    not, the Windows Home Server may actually be smaller than
    your other computers, even your laptops.

  9. best longboard brands April 30, 2014 at 8:48 PM #

    Hi all, here every person is sharing these kinds of know-how, therefore it’s nice to read this weblog,
    and I used to go to see this website daily.

  10. This website was… how do you say it? Relevant!!
    Finally I have found something that helped me. Cheers!

  11. May 4, 2014 at 2:39 PM #

    After looking into a handful of the blog posts on your web site, I truly appreciate your technique of blogging.
    I added it to my bookmark website list and will be checking back in the near future.
    Please check out my website too and let me know what you think.

  12. framing nailer reviews May 4, 2014 at 9:28 PM #

    I always emailed this weblog post page to
    all my contacts, because if like to read it after that my contacts
    will too.

  13. May 21, 2014 at 11:46 AM #

    World of Warcraft can be an enormous amount of fun to play.

  14. What does this mean?

  15. penis enlargement bible review May 21, 2014 at 7:43 PM #

    Great blog here! Also your website loads up fast!
    What web host are you using? Can I get your affiliate
    link to your host? I wish my web site loaded up as quickly as yours lol

  16. May 22, 2014 at 12:15 PM #

    Link exchange is nothing else however it is just placing the other person’s website link on your page at
    proper place and other person will also do same in support
    of you.

  17. Jonna May 29, 2014 at 7:28 PM #

    hey there and thank you for your info – I have certainly picked up anything new from right here.
    I did however expertise some technical points using this website, since I experienced to reload the
    website a lot of times previous to I could get it to load properly.
    I had been wondering if your web host is OK?
    Not that I am complaining, but sluggish loading instances times will very frequently
    affect your placement in google and can damage your
    quality score if advertising and marketing with Adwords.
    Anyway I am adding this RSS to my e-mail and could look out for much more of your respective fascinating content.
    Ensure that you update this again soon.

  18. how to win back your ex boyfriend June 9, 2014 at 12:57 AM #

    Hi, every time i used to check web site posts here in the early hours in the daylight, as i love to find out more and more.

  19. reviews June 20, 2014 at 11:32 PM #

    HGH spray is often a natural homeopathic liquid consisting of natural HGH BOOSTER
    and potent amino acids that are designed to stimulate your body and reverse the aging process.
    Sometimes these supplements may make the body do things that are unnatural
    and cause injury. When you age in your muscles become weak or their tissues start deteriorating (atrophy).

  20. michael fiore text your ex back September 29, 2014 at 6:12 AM #

    I’m not sure where you are getting your information, but great topic.

    I needs to spend some time learning more or understanding more.
    Thanks for fantastic info I was looking for this info for
    my mission.

  21. pinterest October 18, 2014 at 5:12 PM #

    Whether you’re a business or personal brand, you should definitely pay attention to Pinterest.

    I recommend using a simple font that is easy to read in a size ranging from 32 to 40.

    The “following” and “followers” selection operates
    in the same fashion as Google+ and Twitter.

Leave a Reply:

Gravatar Image