Two hundred plus people who have likely never met travel across the country (or around the world) to gather together and share intimate details of their lives like they are long lost family.
This is what happens when The Trigeminal Neuralgia Association offers their national conferences.
Something about meeting others who have actually felt the indescribable jolts of trigeminal neuralgia and other face pain syndromes is unique. Knowing others have experienced this and are surviving is validating and encouraging. Hearing their stories seems to validate my own. It may be the only place where our stories of incredible pain are really understood.
We are able to find out what kind of treatments have helped others. Some have found relief from the monster and sadly others have found no way out of this nightmare.
Medical experts from around the world share the latest in science regarding the causes and treatments of this disease.
Often people who find relief from their pain walk away from this group and never turn back. Getting on with their lives without TN. Thus people who are still in pain don’t get to see many in real life who once had TN and no longer do. One important reason I go is to be a face of hope. The other reason is because I can never forget. I can never take for granted a pain free day.
Thank you TNA for providing these national and regional conferences. Thank you for your website that allows us to connect even when we aren’t face to face. Thank you for brining on The Facial Pain Research Foundation to find a cure. Thank you for participating in the 1st International Trigeminal Neuralgia Awareness Day.